Question:
Hi everyone.
I wrote an Essay about P/PA and how I feel about myself now. It was for our community college's club awareness week.
I got a lot of responses on it. It wasn't graded or anything. I just thought I'd share it with everyone here.
I love to write, always have. It is my passion. One that PA could destroy one day. It scares me.
So anyway, here it is. :D :cool:
Pain and Equilibrium
Sit a spell and catch your breath. Rise with difficulty and grasp the stability nearest you. Huff and Puff and blow down all your dignity.
That is a moment in the life of Pain and Equilibrium.
I search daily for the inner strength to complete the little things that make me human. Opposable thumbs...only when they are working my friend.
Life is a road that is always under contruction. My road, however, is also in a chronic state of "work ahead". Always struggling to appear normal, yet failing so blantantly. I delude myself into believing I am Handy Capable.
Not from birth did I receive my cross to bare. no, I was bestowed it after I had already grown accustomed to the delights of being "Normal". Like others before me, I have to learn to re-this and re-that. Adapt to a life that refuses to accept the truth. You are no longer the person you once were.
My river of tears has reached flood stage.
I have been told there are fates far worse than death. I believe that now. I feel as though I have died a thousand times over. Each time a new challenge arises that was once old hat, I cringe and turn inside
myself.
And there I remain, a prisoner until further notice. Where, I fear, I may become a prisoner eternaly.
And I lay in wait for every "next time", when I will pause from my pain and prepare for my equilibrium.
Keep writing Jessica! It is very theraputic. It helps so much to Write down our feelings. It cleanses our souls.
Margaret
You did a great job!! Keep writing. Jessica. Keep writing.
Blessings,
Joe
you did a wonderful job Jessica. :D
have a good day all
richard
Wow, that was really good.
Jess,
Beautifully written. What is your major? My youngest son is 3 months's from his Associate's (it was a struggle in the begininning for him). Good luck on your journey towards your career. If you need some encouragement pop in and talk!!! You have a fine talent for wiritng.
XOXO
Annie
Jessica, thanks for sharing.....very well written......A+
Thank you all soooo much!
My degree will be Associate of Arts. Nothing really special, however....As soon as I graduate, hopefully in May of 2006, I am going to transfer to Ohio State and work on my BS in Atmoshperic Science. I'm gonna be a weather gal!
My dream is to work for NASA or the National Weather Service in their severe storms prediction areas. But, my hobby, or passion at this point in my life, is writing.
With PA, most of my pain is internal, meaning people generally can't see the pain or disability causers. People who don't know me can't understand why I can't open heavy doors, or why I pull my backpack on wheels behind me. They don't get up close enough to see the nodules forming on my finger joints-the reason I can't always hold a pen to write really well. In essence, as you all well know, outsiders just don't get it.
And that is kinda why I wrote it. Although, some still don't get it. ;) I look like I am handicapped due to my weight. Oh well.
I will keep on writing until they pull the pen out of my cold, stiff fingers...you know, tomorrow after I get home from school when it's really cold out!!! :eek:
Take care!!!!! :cool:
I wrote an Essay about P/PA and how I feel about myself now. It was for our community college's club awareness week.
I got a lot of responses on it. It wasn't graded or anything. I just thought I'd share it with everyone here.
I love to write, always have. It is my passion. One that PA could destroy one day. It scares me.
So anyway, here it is. :D :cool:
Pain and Equilibrium
Sit a spell and catch your breath. Rise with difficulty and grasp the stability nearest you. Huff and Puff and blow down all your dignity.
That is a moment in the life of Pain and Equilibrium.
I search daily for the inner strength to complete the little things that make me human. Opposable thumbs...only when they are working my friend.
Life is a road that is always under contruction. My road, however, is also in a chronic state of "work ahead". Always struggling to appear normal, yet failing so blantantly. I delude myself into believing I am Handy Capable.
Not from birth did I receive my cross to bare. no, I was bestowed it after I had already grown accustomed to the delights of being "Normal". Like others before me, I have to learn to re-this and re-that. Adapt to a life that refuses to accept the truth. You are no longer the person you once were.
My river of tears has reached flood stage.
I have been told there are fates far worse than death. I believe that now. I feel as though I have died a thousand times over. Each time a new challenge arises that was once old hat, I cringe and turn inside
myself.
And there I remain, a prisoner until further notice. Where, I fear, I may become a prisoner eternaly.
And I lay in wait for every "next time", when I will pause from my pain and prepare for my equilibrium.
Answers:
Keep writing Jessica! It is very theraputic. It helps so much to Write down our feelings. It cleanses our souls.
Margaret
Answers:
You did a great job!! Keep writing. Jessica. Keep writing.
Blessings,
Joe
Answers:
you did a wonderful job Jessica. :D
have a good day all
richard
Answers:
Wow, that was really good.
Answers:
Jess,
Beautifully written. What is your major? My youngest son is 3 months's from his Associate's (it was a struggle in the begininning for him). Good luck on your journey towards your career. If you need some encouragement pop in and talk!!! You have a fine talent for wiritng.
XOXO
Annie
Answers:
Jessica, thanks for sharing.....very well written......A+
Answers:
Thank you all soooo much!
My degree will be Associate of Arts. Nothing really special, however....As soon as I graduate, hopefully in May of 2006, I am going to transfer to Ohio State and work on my BS in Atmoshperic Science. I'm gonna be a weather gal!
My dream is to work for NASA or the National Weather Service in their severe storms prediction areas. But, my hobby, or passion at this point in my life, is writing.
With PA, most of my pain is internal, meaning people generally can't see the pain or disability causers. People who don't know me can't understand why I can't open heavy doors, or why I pull my backpack on wheels behind me. They don't get up close enough to see the nodules forming on my finger joints-the reason I can't always hold a pen to write really well. In essence, as you all well know, outsiders just don't get it.
And that is kinda why I wrote it. Although, some still don't get it. ;) I look like I am handicapped due to my weight. Oh well.
I will keep on writing until they pull the pen out of my cold, stiff fingers...you know, tomorrow after I get home from school when it's really cold out!!! :eek:
Take care!!!!! :cool:
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