Question:
We had a chat meeting in yahoo page. We were talking about the pin project. Do you agree with the pin idea ?
I went to the meeting and we all agreed to take a poll, to see what the consensus is for the pin project....we will see how many are interested and then take it from there......
Sally
I voted yes on the PIN idea............
I voted yes too. :cool:
Mike
I'm a big Y-E-S!!! Sounds like a wonderful idea.
I voted no.
I don't need to wear a pin to let people know I have Psoriasis (same as many, I'm sure) and if I do clear I don't want any other physical reminders besides thinned skin from topical steroid use.
Just my opinion, please don't be offended :)
Originally posted by Bryar
I voted no.
I don't need to wear a pin to let people know I have Psoriasis (same as many, I'm sure) and if I do clear I don't want any other physical reminders besides thinned skin from topical steroid use.
Just my opinion, please don't be offended :)
I think it is a great idea and would support those who want it. However, I am with Bryar. I have tried so hard to get P to go away. I don't want another reminder either.
I also voted 'no', but not because of the self reminder concern. I certainly don't need a pin to let people know I have psoriasis, it's pretty obvious on it's own. To me if we are trying to get a message out more people should be actively pursuing the chance to start a support group. These support groups open the door for press releases and interviews on local news stations. We have a South Florida support group, but I am even working to see what the chances are of starting a seperate support group in Dade county (as opposed to the one that is in West Palm Beach County 40 minutes away).
"no" from me, but i'm not a pin/bumper sticker kind of person...
I simply said no, because i do recall at the convention they had FREE PINS that said something like NPF Psoriasis Convention (or somehting of the sort) and i saw many people pass them up. In addition, I did take one, but honestly have never worn it. Plus Chaim brings up a good point, at least to me.
This does not mean it is not a great idea, just not one that i might participate in. For those of you who do, you have my support!
Take care and smile
Bella
I voted yes
Ans # 1.) We are members of the NPF who would like to have a pin for anyone that would like one...Anyone is welcome to give advice, etc...We are doing the poll to see how many would be interested...If we find enough people that would like one, we were thinking of a contest...there is more information on other threads, and I am going to try and post one here...
Ans # 2.) So far we have found a few sites that will make the pins at a very low cost...We do not intend to make money...just charge for the cost of the pin and shipping...etc...
One of our members has set up a web-site for us, so that we can discuss issues as they come up...I will try to put that on too...there is a chat room there too...
(sorry, I don't know how to do this too well)
So, anyone and everyone is welcome to help out...
I would be honored to own a p pin ever if I did not wear it!
To me it would be like a friendship pin that linked me to others with the disease! Especially my p friends here!
Hey!
I voted yes becuz i think that it would be awesome!!!
Some people have said that they dont need people to see a pin saying they have psoriasis... But that is not the point in the pin. The pin is just like any pin that you would wear for any organization (school, work, breast cancer, abortion, etc). It is a pin to show that we are one as a NPF family!!
xoxox Kim
you are just too smart for your young age....I couldn't have said it better!!!Not that I'm knocking anyone that doesn't want one....to each their own taste as the old lady bent over and kissed her cow.....
but you put it so well.....I'm sure people with aids feel the same way.....about advertising their disease....but its all about awareness ....making people aware of what we have and what they might someday get or maybe a friend, relative, child, etc. will discover this unpredicable gene. Its all about educating.....I don't like having P, but I don't mind talking about it...so I will wear the pin and try to make a few people aware of what an affliction this is we have......
I'd rather wear the pin than go on Oprah:D
Hey,
Sally- thx!! lol u dont wanna go on Oprah? heehee! I'd rather wear a pin AND go on Oprah!
Spiderman- waz that comment s'posed to say that im not smart??
xoxox Kim
Originally posted by melanee
"no" from me, but i'm not a pin/bumper sticker kind of person...
I agree with you. I hate being a walking advertisement.
I voted "no" because I just don't tell people. They don't need to know unless they ask.
Originally posted by MariaPaula
We had a chat meeting in yahoo page. We were talking about the pin project. Do you agree with the pin idea ?
Hello all :)
Would someone please explain the pin projet to me?
From reading this thread, I think I understand most of it? We would hire a company to make P pins for us, and we have the option of buying them and wearing them?
PJ Leary brought me home a very nice pin from last year's National Conference in Chicago. We wore them to lunch that day and were proud to do so. :)
So I'm wondering. Can't we just order the pins that have ALREADY been designed and made, from the NPF for free? (Possibly postage)
Also, do y'all think it's wise to change the colors of an already established organization? I think the orange and the purple/blue is very nice and I'm sure the NPF put a lot of thought into colors when the organization was originally formed.
I may be totally wrong about this, because I'm still not quite sure just how the pin project would work. So please explain it to me. :D :D
After I know the "scoop" lol, I'll be able to answer the poll.
Thanks!!! :cool:
Barbara
I voted yes because I want to support the ones who really want it. And I want to have one too. But I am not so sure if I am gonna use it every day. I dont think so.
I voted yes. I think it would help to educate people. You know, the nosey ones that get thier noses right down on your clothes and squint and say What does your pin say? LOL
Margaret
Hi Barbara, the subject of a "pin" came up again. A lot of members have voiced that they would like a pin to wear for awareness, in support of friends and family with P, the same line like the pink ribbon pins people wear in support of breast cancer victims, the yellow ribbons we wear in support of our troops, there's a purple pin for domestic violence awareness. There seems to be an awareness pin out there for just about everything...but psoriasis. The idea started that we would form a committee to look into the project, there was an interest about having a design contest, winning design to be made into a pin. then we would have to collect the money, and distribute the pins. It would be a huge project. We're talking about the size of a lapel pin. Other members including myself have contacted the NPF and they have emailed us back and said that they would have to find a sponsor, it has to be approved, all in all they love the idea but it isn't something their able to committ to right now. They also said we can not use the NPF logo or the initials NPF, (their copy writed, or whatever they call it). They don't have any pins available for us to buy. Too bad cause they could sell a lot of them. They must have pins made up for special events like the conference.
So that brought us back to tossing the idea around of doing the project by ourselves. Although we can't use the Logo or NPF, they never said we couldn't use the colors, that lead me to another idea of approaching a company and asking them to make us an awareness pin in the color or colors that gets the most votes. That way they would be an in stock item and anyone who wants a pin could always go to that company and order, I personally would love to see the pin done like these on this site.
http://www.pinmart.com/catalog.cfm?cat=81
the 2 color pin they have for the baby, then the lupus pin....if they could make the pin in the blue/purple and orange (the NPF) colors and then put psoriasis (like the lupus pin).....I think it would be a great pin.
I set up a yahoo page www.groups.yahoo.com/group/pinsforP
where we have been kicking around ideas, which led to the poll to see how many people are really interested, which led to me finding the awareness pin site etc, etc....so that's the saga of the pin story...Most of the "pin" posts have the emails I received from Eve at NPF about the pins. We're trying to locate as many P groups we can to let everyone know about the pin idea. The yahoo page is open to anyone.
Thanks!!
Call me Mr. Spock. I used logic when I voted, YES, to the pin idea.
I look at it this way:
If the final tally is, NO - that removes any option to those who may want the pin.
If the final tally is, YES - those who want the pin can get one.
I guess that what we should be voting on is the OPTION. And to that I say, "Why not?" If you want a pin, why should I hinder your chances of getting one.
For me, I would probably buy a pin, but would never wear it. I would only want one as a keepsake.
are active /members of the message boards? Just curious, because we only have at this point 22 members that are interested in the pin.....maybe we should just get a design {anyway you want} and order! I know the more we order the less expensive they will be.....but they weren't that expensive to begin with...under $5.00 right?
Sally
1 Attachment(s) Note from the Psoriasis Foundation Member Services Coordinator:
We do have a small number of Psoriasis Foundation Member pins available for purchase.
Because we have fewer than 200 in stock, we did not bring them up in the original "pin" threads.
However, we have decided to make the "Member" pins available to those on the message boards who want them.
They will be sold for $5 (that price includes shipping & handling). You can see a picture of the pin at the bottom of my message.
You must be an active Member of the Foundation to purchase a pin (a donation of any amount will make you a Member).
If you would like to purchase a pin, or join as a Member, please contact me directly at 800.723.9166, ext. 397, or erice@here. You can order a pin through the mail as well by mailing cash, check or money order to the following:
National Psoriasis Foundation
Attn: Eve-Maridy Rice, Member Services Coordinator
6600 SW 92nd Avenue, Suite 300
Portland, OR 97223-7195
Make sure to specify that you are sending the money to purchase a Member pin.
If you have any additional questions, please call me. We are glad to be able to offer you this Member pin!
Sincerely,
Eve-Maridy Rice
Member Services Coordinator
erice@here
Answers:
I went to the meeting and we all agreed to take a poll, to see what the consensus is for the pin project....we will see how many are interested and then take it from there......
Sally
Answers:
I voted yes on the PIN idea............
Answers:
I voted yes too. :cool:
Mike
Answers:
I'm a big Y-E-S!!! Sounds like a wonderful idea.
Answers:
I voted no.
I don't need to wear a pin to let people know I have Psoriasis (same as many, I'm sure) and if I do clear I don't want any other physical reminders besides thinned skin from topical steroid use.
Just my opinion, please don't be offended :)
Answers:
Originally posted by Bryar
I voted no.
I don't need to wear a pin to let people know I have Psoriasis (same as many, I'm sure) and if I do clear I don't want any other physical reminders besides thinned skin from topical steroid use.
Just my opinion, please don't be offended :)
I think it is a great idea and would support those who want it. However, I am with Bryar. I have tried so hard to get P to go away. I don't want another reminder either.
Answers:
I also voted 'no', but not because of the self reminder concern. I certainly don't need a pin to let people know I have psoriasis, it's pretty obvious on it's own. To me if we are trying to get a message out more people should be actively pursuing the chance to start a support group. These support groups open the door for press releases and interviews on local news stations. We have a South Florida support group, but I am even working to see what the chances are of starting a seperate support group in Dade county (as opposed to the one that is in West Palm Beach County 40 minutes away).
Answers:
"no" from me, but i'm not a pin/bumper sticker kind of person...
Answers:
I simply said no, because i do recall at the convention they had FREE PINS that said something like NPF Psoriasis Convention (or somehting of the sort) and i saw many people pass them up. In addition, I did take one, but honestly have never worn it. Plus Chaim brings up a good point, at least to me.
This does not mean it is not a great idea, just not one that i might participate in. For those of you who do, you have my support!
Take care and smile
Bella
Answers:
I voted yes
Answers:
Ans # 1.) We are members of the NPF who would like to have a pin for anyone that would like one...Anyone is welcome to give advice, etc...We are doing the poll to see how many would be interested...If we find enough people that would like one, we were thinking of a contest...there is more information on other threads, and I am going to try and post one here...
Ans # 2.) So far we have found a few sites that will make the pins at a very low cost...We do not intend to make money...just charge for the cost of the pin and shipping...etc...
One of our members has set up a web-site for us, so that we can discuss issues as they come up...I will try to put that on too...there is a chat room there too...
(sorry, I don't know how to do this too well)
So, anyone and everyone is welcome to help out...
Answers:
I would be honored to own a p pin ever if I did not wear it!
To me it would be like a friendship pin that linked me to others with the disease! Especially my p friends here!
Answers:
Hey!
I voted yes becuz i think that it would be awesome!!!
Some people have said that they dont need people to see a pin saying they have psoriasis... But that is not the point in the pin. The pin is just like any pin that you would wear for any organization (school, work, breast cancer, abortion, etc). It is a pin to show that we are one as a NPF family!!
xoxox Kim
Answers:
you are just too smart for your young age....I couldn't have said it better!!!Not that I'm knocking anyone that doesn't want one....to each their own taste as the old lady bent over and kissed her cow.....
but you put it so well.....I'm sure people with aids feel the same way.....about advertising their disease....but its all about awareness ....making people aware of what we have and what they might someday get or maybe a friend, relative, child, etc. will discover this unpredicable gene. Its all about educating.....I don't like having P, but I don't mind talking about it...so I will wear the pin and try to make a few people aware of what an affliction this is we have......
I'd rather wear the pin than go on Oprah:D
Answers:
Hey,
Sally- thx!! lol u dont wanna go on Oprah? heehee! I'd rather wear a pin AND go on Oprah!
Spiderman- waz that comment s'posed to say that im not smart??
xoxox Kim
Answers:
Originally posted by melanee
"no" from me, but i'm not a pin/bumper sticker kind of person...
I agree with you. I hate being a walking advertisement.
I voted "no" because I just don't tell people. They don't need to know unless they ask.
Answers:
Originally posted by MariaPaula
We had a chat meeting in yahoo page. We were talking about the pin project. Do you agree with the pin idea ?
Hello all :)
Would someone please explain the pin projet to me?
From reading this thread, I think I understand most of it? We would hire a company to make P pins for us, and we have the option of buying them and wearing them?
PJ Leary brought me home a very nice pin from last year's National Conference in Chicago. We wore them to lunch that day and were proud to do so. :)
So I'm wondering. Can't we just order the pins that have ALREADY been designed and made, from the NPF for free? (Possibly postage)
Also, do y'all think it's wise to change the colors of an already established organization? I think the orange and the purple/blue is very nice and I'm sure the NPF put a lot of thought into colors when the organization was originally formed.
I may be totally wrong about this, because I'm still not quite sure just how the pin project would work. So please explain it to me. :D :D
After I know the "scoop" lol, I'll be able to answer the poll.
Thanks!!! :cool:
Barbara
Answers:
I voted yes because I want to support the ones who really want it. And I want to have one too. But I am not so sure if I am gonna use it every day. I dont think so.
Answers:
I voted yes. I think it would help to educate people. You know, the nosey ones that get thier noses right down on your clothes and squint and say What does your pin say? LOL
Margaret
Answers:
Hi Barbara, the subject of a "pin" came up again. A lot of members have voiced that they would like a pin to wear for awareness, in support of friends and family with P, the same line like the pink ribbon pins people wear in support of breast cancer victims, the yellow ribbons we wear in support of our troops, there's a purple pin for domestic violence awareness. There seems to be an awareness pin out there for just about everything...but psoriasis. The idea started that we would form a committee to look into the project, there was an interest about having a design contest, winning design to be made into a pin. then we would have to collect the money, and distribute the pins. It would be a huge project. We're talking about the size of a lapel pin. Other members including myself have contacted the NPF and they have emailed us back and said that they would have to find a sponsor, it has to be approved, all in all they love the idea but it isn't something their able to committ to right now. They also said we can not use the NPF logo or the initials NPF, (their copy writed, or whatever they call it). They don't have any pins available for us to buy. Too bad cause they could sell a lot of them. They must have pins made up for special events like the conference.
So that brought us back to tossing the idea around of doing the project by ourselves. Although we can't use the Logo or NPF, they never said we couldn't use the colors, that lead me to another idea of approaching a company and asking them to make us an awareness pin in the color or colors that gets the most votes. That way they would be an in stock item and anyone who wants a pin could always go to that company and order, I personally would love to see the pin done like these on this site.
http://www.pinmart.com/catalog.cfm?cat=81
the 2 color pin they have for the baby, then the lupus pin....if they could make the pin in the blue/purple and orange (the NPF) colors and then put psoriasis (like the lupus pin).....I think it would be a great pin.
I set up a yahoo page www.groups.yahoo.com/group/pinsforP
where we have been kicking around ideas, which led to the poll to see how many people are really interested, which led to me finding the awareness pin site etc, etc....so that's the saga of the pin story...Most of the "pin" posts have the emails I received from Eve at NPF about the pins. We're trying to locate as many P groups we can to let everyone know about the pin idea. The yahoo page is open to anyone.
Thanks!!
Answers:
Call me Mr. Spock. I used logic when I voted, YES, to the pin idea.
I look at it this way:
If the final tally is, NO - that removes any option to those who may want the pin.
If the final tally is, YES - those who want the pin can get one.
I guess that what we should be voting on is the OPTION. And to that I say, "Why not?" If you want a pin, why should I hinder your chances of getting one.
For me, I would probably buy a pin, but would never wear it. I would only want one as a keepsake.
Answers:
are active /members of the message boards? Just curious, because we only have at this point 22 members that are interested in the pin.....maybe we should just get a design {anyway you want} and order! I know the more we order the less expensive they will be.....but they weren't that expensive to begin with...under $5.00 right?
Sally
Answers:
1 Attachment(s) Note from the Psoriasis Foundation Member Services Coordinator:
We do have a small number of Psoriasis Foundation Member pins available for purchase.
Because we have fewer than 200 in stock, we did not bring them up in the original "pin" threads.
However, we have decided to make the "Member" pins available to those on the message boards who want them.
They will be sold for $5 (that price includes shipping & handling). You can see a picture of the pin at the bottom of my message.
You must be an active Member of the Foundation to purchase a pin (a donation of any amount will make you a Member).
If you would like to purchase a pin, or join as a Member, please contact me directly at 800.723.9166, ext. 397, or erice@here. You can order a pin through the mail as well by mailing cash, check or money order to the following:
National Psoriasis Foundation
Attn: Eve-Maridy Rice, Member Services Coordinator
6600 SW 92nd Avenue, Suite 300
Portland, OR 97223-7195
Make sure to specify that you are sending the money to purchase a Member pin.
If you have any additional questions, please call me. We are glad to be able to offer you this Member pin!
Sincerely,
Eve-Maridy Rice
Member Services Coordinator
erice@here
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