Question:
This is a great place fill with wonderful information but to often we stay away from those issues that are so critical to the members of this sight.
After reading numerous post and chatting with many people it is truely sad that many people with psoriasis must suffer because they have no insurance to cover the hight cost of medications. Forcing many to use alternative methoids of treatment or to use sparringly those drugs thst they do uset to spread them out.
For those who are at the poverty line and just above there are free meds available through sites like Needymeds.com
To often working people must choise between meds, food, shelter. There are also studies where expermmintal drugs are teasted. Where w become guinea pigs to obtain the drugs we need. Those who do have insurance must face the fact that co-payments can be as high as twenty percent or more. With the price of the new Bioligics at between $10,000 to $20,000 a year how can elders, senoirs, young people and middle class American affored to pay for drugs that equal $1,000, $20000, $3000 a year and more.
When you factor in to the equasion that many in rural American don't even have access to proper medical care regardless of their insurance it starts to make you wonder.
I pose the following questions:
1) Should Universal Health Care be available to all Americans from craddle to grave and that those new age medicines be available to that need them.
2)Should the NPF be lobbying on the behalf of its members for such universal health care. Beside doing the wonderful job that do for advocating for new and exciting drugs. But has these drugs come to the market what good is it if too many can't afforded them.
3)Should the US govenment through the NHI (National Institue Of Health) or other agency foot the bill for the research and development need to find even better and more expensive drugs and treatments. And that reshearch shared with the drugs companies to lower the cost of R&D to them?_
4) Billion and billion of dollars are wasted each year on corporate welfare. Why not spend that money of R&D?
5) Should anyone be denied the meds or care for any condition be it Psoriasis on not?
.
6) Should NPF be so closely assoicated with the big drug companys. THey receive funding, they underwrtie educational forums and help fund the cost of their annual covention. Is this not a conflict of interest.
THer are just 6 question but will give you a lot to think about. I have tried to stay as neutral as I can. Looking forward to lively debate on the issue.
This is a conversation thread but we seldom get into debate on any of the meaty issues that effect us and our families lives every day.
Mitch aka Rosy
Morning Mitch,
I'm not to sure how it works in America, but I do think its heartbreaking when I hear people on here say they cannot afford to buy meds.
Here is the uk anyone with an illness like Diabetes automatically gets free prescriptions because it will never go away. However if you have somthing like p (which most probably will never go away) then it doesnt make any difference, you still have to pay for prescriptions, and that as most people are aware can be very expensive.
I'll start by addressing No. 5:
5) Should anyone be denied the meds or care for any condition be it Psoriasis on not?
No. and it should be free.
Anyone that has seen a doctor and has been diagnosed and needs medical care or a prescription for medicine should be given it at no cost.
All the expensive of the care and medicine should be paid for from a special government department that prints extra money to cover those costs.
:)
Vote for me in 2004!
Denise...........you've got my vote!!!!
AMEN to that Mitch, It's well said & written!!!!!!!!!
There was someone on Friday that had PM'd me & I called NPF & asked how
did this person get my name plus be able to PM me. Well, Crystal said she would look into
it for me... It so happened this person was from NPF & he wrote me an E-mail saying he was
sorry to alarm me & that he had been looking through the files & found that I was from Oregon.
Oregon has an Oregon Health plan which is like Medicaid that had been passed, & he had asked me
to write to Washington rebutting that as of Jan. 1, 2004 Oregon Health Plan will discontinue
paying for Psoriasis claims. Well, yesterday I had an app't. with my Derm. and I asked him about
this (although, I'm not on it) He verified that they did get informed that as Jan. 1st. of this year, Psoriasis
will not be covered by the Oregon Health Plan. So, NPF is trying to do something in Oregon anyway
that I know of.
This gets my blood boiling as Washington can give themselve huge raises but to give people suffering
from some kind of disease they take away the affordable health care insurance.
:mad:
In Australia we have a great scheme where if you need medication and you have a doctors prescription the most you will pay for most items is around $23.00. There are some medications that are not in the scheme but I haven't come across any for p as yet and I have had p for 7 years. Also if you have what they call an Authority script you can get 5 tubes of cream for around $23.00.
We do not have some of the medications that you talk about in this forum eg Olux and I don't know whether they are just too expensive and are not on the scheme or not, but I would love to try it.
After reading numerous post and chatting with many people it is truely sad that many people with psoriasis must suffer because they have no insurance to cover the hight cost of medications. Forcing many to use alternative methoids of treatment or to use sparringly those drugs thst they do uset to spread them out.
For those who are at the poverty line and just above there are free meds available through sites like Needymeds.com
To often working people must choise between meds, food, shelter. There are also studies where expermmintal drugs are teasted. Where w become guinea pigs to obtain the drugs we need. Those who do have insurance must face the fact that co-payments can be as high as twenty percent or more. With the price of the new Bioligics at between $10,000 to $20,000 a year how can elders, senoirs, young people and middle class American affored to pay for drugs that equal $1,000, $20000, $3000 a year and more.
When you factor in to the equasion that many in rural American don't even have access to proper medical care regardless of their insurance it starts to make you wonder.
I pose the following questions:
1) Should Universal Health Care be available to all Americans from craddle to grave and that those new age medicines be available to that need them.
2)Should the NPF be lobbying on the behalf of its members for such universal health care. Beside doing the wonderful job that do for advocating for new and exciting drugs. But has these drugs come to the market what good is it if too many can't afforded them.
3)Should the US govenment through the NHI (National Institue Of Health) or other agency foot the bill for the research and development need to find even better and more expensive drugs and treatments. And that reshearch shared with the drugs companies to lower the cost of R&D to them?_
4) Billion and billion of dollars are wasted each year on corporate welfare. Why not spend that money of R&D?
5) Should anyone be denied the meds or care for any condition be it Psoriasis on not?
.
6) Should NPF be so closely assoicated with the big drug companys. THey receive funding, they underwrtie educational forums and help fund the cost of their annual covention. Is this not a conflict of interest.
THer are just 6 question but will give you a lot to think about. I have tried to stay as neutral as I can. Looking forward to lively debate on the issue.
This is a conversation thread but we seldom get into debate on any of the meaty issues that effect us and our families lives every day.
Mitch aka Rosy
Answers:
Morning Mitch,
I'm not to sure how it works in America, but I do think its heartbreaking when I hear people on here say they cannot afford to buy meds.
Here is the uk anyone with an illness like Diabetes automatically gets free prescriptions because it will never go away. However if you have somthing like p (which most probably will never go away) then it doesnt make any difference, you still have to pay for prescriptions, and that as most people are aware can be very expensive.
Answers:
I'll start by addressing No. 5:
5) Should anyone be denied the meds or care for any condition be it Psoriasis on not?
No. and it should be free.
Anyone that has seen a doctor and has been diagnosed and needs medical care or a prescription for medicine should be given it at no cost.
All the expensive of the care and medicine should be paid for from a special government department that prints extra money to cover those costs.
:)
Vote for me in 2004!
Answers:
Denise...........you've got my vote!!!!
Answers:
AMEN to that Mitch, It's well said & written!!!!!!!!!
There was someone on Friday that had PM'd me & I called NPF & asked how
did this person get my name plus be able to PM me. Well, Crystal said she would look into
it for me... It so happened this person was from NPF & he wrote me an E-mail saying he was
sorry to alarm me & that he had been looking through the files & found that I was from Oregon.
Oregon has an Oregon Health plan which is like Medicaid that had been passed, & he had asked me
to write to Washington rebutting that as of Jan. 1, 2004 Oregon Health Plan will discontinue
paying for Psoriasis claims. Well, yesterday I had an app't. with my Derm. and I asked him about
this (although, I'm not on it) He verified that they did get informed that as Jan. 1st. of this year, Psoriasis
will not be covered by the Oregon Health Plan. So, NPF is trying to do something in Oregon anyway
that I know of.
This gets my blood boiling as Washington can give themselve huge raises but to give people suffering
from some kind of disease they take away the affordable health care insurance.
:mad:
Answers:
In Australia we have a great scheme where if you need medication and you have a doctors prescription the most you will pay for most items is around $23.00. There are some medications that are not in the scheme but I haven't come across any for p as yet and I have had p for 7 years. Also if you have what they call an Authority script you can get 5 tubes of cream for around $23.00.
We do not have some of the medications that you talk about in this forum eg Olux and I don't know whether they are just too expensive and are not on the scheme or not, but I would love to try it.
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