Question:
It's a little disconcerting to look into signing up for membership and find no information about cost without first giving extensive personal information.
If this information is someplace obvious that I missed I apologize, but what is the fee?
Also... if any of you really feel it's worth the cost, I'd love to hear why. I've donated to research but never joined the NPF or any similar group yet.
I think that they suggest that you pay something like $25 or $30, but will accept lower amounts. This is a non-profit organization, so they have basically 3 revenue sources: membership fees, direct donations and ad revenue in their magazine. They use that to support the staff that does various things, such as advocacy for the coverage of psoriasis-relieving medications, questions on how to handle insurance companies, produce the magazine, maintain the website etc. You also get access to more info, and don't need to battle through ads and the like to use a discussion forum, which is how 'free' web boards often support themselves.
They dont really ask for much personal information. Other than your email address, your mailman already knows everything they asked for, especially if one of your bills ever arrived unglued! I believe the membership fees are tax deductible if you itemize, but am not certain of that.
Their policy states that they do not sell any info on their members to any other group, so I don't think the info part is a big deal. I joined abt 6 months ago, and have never gotten any email from anyone other than NPF.
THANKS!
I've donated in the past but never "joined" and I have a thing about typing in the info before knowing what the punchline will be.
I learned the hard way never to give out that information lightly. My mum offered to give me this as a Christmas present when she heard me speaking about it, so I feel comfortable with that amount.
I appreciate the response!
Note from the Psoriasis Foundation Member SErvices Coordinator:
Welcome to our Web site!
Membership in the Psoriasis Foundation is a donation of any amount. Even $1 will make you an active member for one year.
There are a couple of different ways you can join the Psoriasis Foundation. You can sign up via the telephone by calling us toll-free at 800.723.9166, or through the mail be requesting one of our donation envelopes. Or on this Web site.
Membership will entitle you to the following member benefits:
Receive six issues of Psoriasis Advance, a magazine connecting the psoriasis and psoriatic arthritis community
Get your free Psoriasis and Psoriatic Arthritis Treatment Guide, a handbook featuring hundreds of treatment options
Receive your free Guide to Living with Psoriasis and Psoriatic Arthritis, a practical guide to living with your disease
You'll also receive the following online benefits:
Access the Psoriasis and Psoriatic Arthritis Treatment Guide featuring over 300 different treatment options
Discover resources others have found helpful in It Works For Me
Access a medical expert's answers to questions from people like you
Participate in online community discussions and events
Order helpful booklets designed to address your specific concerns
Read the online version of Psoriasis Advance, a magazine just for you
Locate a doctor in your area through an online Physician Directory
Find support and connect with others like you through interactive message boards
Receive special e-mail newsletters filled with important news and information
I hope you find all of this information helpful. Please feel free to contact me directly if I can be of any further assistance to you!
Sincerely,
Eve-Maridy Rice
Member Services Coordinator
erice@here
If this information is someplace obvious that I missed I apologize, but what is the fee?
Also... if any of you really feel it's worth the cost, I'd love to hear why. I've donated to research but never joined the NPF or any similar group yet.
Answers:
I think that they suggest that you pay something like $25 or $30, but will accept lower amounts. This is a non-profit organization, so they have basically 3 revenue sources: membership fees, direct donations and ad revenue in their magazine. They use that to support the staff that does various things, such as advocacy for the coverage of psoriasis-relieving medications, questions on how to handle insurance companies, produce the magazine, maintain the website etc. You also get access to more info, and don't need to battle through ads and the like to use a discussion forum, which is how 'free' web boards often support themselves.
They dont really ask for much personal information. Other than your email address, your mailman already knows everything they asked for, especially if one of your bills ever arrived unglued! I believe the membership fees are tax deductible if you itemize, but am not certain of that.
Their policy states that they do not sell any info on their members to any other group, so I don't think the info part is a big deal. I joined abt 6 months ago, and have never gotten any email from anyone other than NPF.
Answers:
THANKS!
I've donated in the past but never "joined" and I have a thing about typing in the info before knowing what the punchline will be.
I learned the hard way never to give out that information lightly. My mum offered to give me this as a Christmas present when she heard me speaking about it, so I feel comfortable with that amount.
I appreciate the response!
Answers:
Note from the Psoriasis Foundation Member SErvices Coordinator:
Welcome to our Web site!
Membership in the Psoriasis Foundation is a donation of any amount. Even $1 will make you an active member for one year.
There are a couple of different ways you can join the Psoriasis Foundation. You can sign up via the telephone by calling us toll-free at 800.723.9166, or through the mail be requesting one of our donation envelopes. Or on this Web site.
Membership will entitle you to the following member benefits:
Receive six issues of Psoriasis Advance, a magazine connecting the psoriasis and psoriatic arthritis community
Get your free Psoriasis and Psoriatic Arthritis Treatment Guide, a handbook featuring hundreds of treatment options
Receive your free Guide to Living with Psoriasis and Psoriatic Arthritis, a practical guide to living with your disease
You'll also receive the following online benefits:
Access the Psoriasis and Psoriatic Arthritis Treatment Guide featuring over 300 different treatment options
Discover resources others have found helpful in It Works For Me
Access a medical expert's answers to questions from people like you
Participate in online community discussions and events
Order helpful booklets designed to address your specific concerns
Read the online version of Psoriasis Advance, a magazine just for you
Locate a doctor in your area through an online Physician Directory
Find support and connect with others like you through interactive message boards
Receive special e-mail newsletters filled with important news and information
I hope you find all of this information helpful. Please feel free to contact me directly if I can be of any further assistance to you!
Sincerely,
Eve-Maridy Rice
Member Services Coordinator
erice@here
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