Question:
Got an email from my mom... a friend of hers saw ABC NEWS and they did this...... WONDERFUL WINDERFUL WONDERFUL!!!
http://abcnews.go.com/Health/Health/story?id=1253231
Thanks for posting this, Katie! I'm thrilled for Fred, and I'm thrilled for all of us!
Jody
Thanks Katie for posting this too. I had the wonderful oppurtunity to meet Fred last year at Capital Hill Days and he is such an inspiring man. I am so looking forward to seeing this film and I am thankful he did it to let others know of this condition. I wish him all the luck in the world,
Everyone try to see this film whenever or wherever you can.
Sandy
hi katie,
thank you for postting that and great job fred. it was wonderful
have a good night all
richard
Great artical!
Everyone should get their free copy of the movie............
Hi,
Barbara mentioned in the Aches and Flakes Gallery there are some pictures of the events.
I'm looking forward to getting my copy.
Sandy
I ordered the DVD a month ago but it never came from www.beyondpsoriasis.com
Did anybody else not receive theirs?
kaylie
Hi Kaylie,
I haven't gotten mine yet either.
Mike
It says 6-8 weeks for delivery........... :(
Way to go Fred... Congratulations. I can't wait to see the film.
I got mine. I am about to start Raptiva and in the starter kit low and behold was a DVD of Fred's film, "My Skis's On Fire". I am greatful for the copy and haven't had the chance to watch it again in the privacy of my living room but I will. Note that I have seen it twice before both in the presents of Fred who's portrail of living with this disease is so powerful.
I hope you all recieve your copies soon. At little note it is powerful and may scare some newer members who are just coming to gripswith their disease. Having said that is an important film which shows what living with P & PA can be like.
Mitch
This is almost beyond embarassment, but I just wanted to let everyone know that Genentech is supposed to be mailing out the DVD of my film AS I WRITE THIS, or within a day or two. .
My dealings with the Corporate World might provide fodder for my next film, though all in all I can't complain. . contract negotiations for the DVD went on far longer than I anticipated, and I will bear some responsibility for that. . so forgive me, all of you, for this overly long waiting period, but I promise you that you will have copies of 'My Skin's on Fire' very soon. .
Thank you all for your patience - I believe it will be worth the wait.
Best Regards,
Fred
Fred, I'm soooo happy to see your post! I've also been waiting. But, you're right....good things are always worth the wait :) Can't wait to see your film and (ahead of time) may I say a special thanks for making it!
Nancy
Fred,
Thanks for the update. I'm sure the film is worth the wait. I just hope mine gets forwarded to my new address. If not, I hope my girls dad saves it for me. I will be going there in April to get my stuff.
Polly
Thanks for the update Fred! There is no need to apologize especially since it's being provided free of charge. It's a wonderful project that you successfully completed and how ever long it takes to finalize the distribution should be fine with everyone.
http://abcnews.go.com/Health/Health/story?id=1253231
Answers:
Thanks for posting this, Katie! I'm thrilled for Fred, and I'm thrilled for all of us!
Jody
Answers:
Thanks Katie for posting this too. I had the wonderful oppurtunity to meet Fred last year at Capital Hill Days and he is such an inspiring man. I am so looking forward to seeing this film and I am thankful he did it to let others know of this condition. I wish him all the luck in the world,
Everyone try to see this film whenever or wherever you can.
Sandy
Answers:
hi katie,
thank you for postting that and great job fred. it was wonderful
have a good night all
richard
Answers:
Great artical!
Everyone should get their free copy of the movie............
Answers:
Hi,
Barbara mentioned in the Aches and Flakes Gallery there are some pictures of the events.
I'm looking forward to getting my copy.
Sandy
Answers:
I ordered the DVD a month ago but it never came from www.beyondpsoriasis.com
Did anybody else not receive theirs?
kaylie
Answers:
Hi Kaylie,
I haven't gotten mine yet either.
Mike
Answers:
It says 6-8 weeks for delivery........... :(
Answers:
Way to go Fred... Congratulations. I can't wait to see the film.
Answers:
I got mine. I am about to start Raptiva and in the starter kit low and behold was a DVD of Fred's film, "My Skis's On Fire". I am greatful for the copy and haven't had the chance to watch it again in the privacy of my living room but I will. Note that I have seen it twice before both in the presents of Fred who's portrail of living with this disease is so powerful.
I hope you all recieve your copies soon. At little note it is powerful and may scare some newer members who are just coming to gripswith their disease. Having said that is an important film which shows what living with P & PA can be like.
Mitch
Answers:
This is almost beyond embarassment, but I just wanted to let everyone know that Genentech is supposed to be mailing out the DVD of my film AS I WRITE THIS, or within a day or two. .
My dealings with the Corporate World might provide fodder for my next film, though all in all I can't complain. . contract negotiations for the DVD went on far longer than I anticipated, and I will bear some responsibility for that. . so forgive me, all of you, for this overly long waiting period, but I promise you that you will have copies of 'My Skin's on Fire' very soon. .
Thank you all for your patience - I believe it will be worth the wait.
Best Regards,
Fred
Answers:
Fred, I'm soooo happy to see your post! I've also been waiting. But, you're right....good things are always worth the wait :) Can't wait to see your film and (ahead of time) may I say a special thanks for making it!
Nancy
Answers:
Fred,
Thanks for the update. I'm sure the film is worth the wait. I just hope mine gets forwarded to my new address. If not, I hope my girls dad saves it for me. I will be going there in April to get my stuff.
Polly
Answers:
Thanks for the update Fred! There is no need to apologize especially since it's being provided free of charge. It's a wonderful project that you successfully completed and how ever long it takes to finalize the distribution should be fine with everyone.
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