Question:
Hi,
I am new here and have had P as long as I can remember. I come form a long line of P folks. I am lucky, I have a very mild case by what I have read here. I believe most on my family do as well. My grandma had it, my mom, my aunt, my sister, my daughter, we all have it. We mostly have the itchy scalp, patchy elbows and knees and occassional really good flare ups. I have been diagnosed with guttate p and have had good flare ups after a few runs of strep. One time on the day I went for a company physical for a new job. Got worse cause I stressed over what would happen with the adorable red bumpy rash all over my body and me going to work with preschoolers. I should not have stressed, in the typical company physical the dr didn't notice the rash until he read it on my info sheet and never looked at it. He asked and when I said it was p he said ok and stamped me well. Lol. I am now 44 yrs old and over the yrs no one has ever sat me down and told me anything about P. I always thought it was just a weird skin ailment. It has not given me much problem. About 5 yrs ago my gyn was looking at recent blood work and said my ANA count was up. Why was that she asked. I told her I did not know what she was talking about. For any who don't know ANA counts represent auto immmunity in the body. A raised count means you have an autoimmune disease like lupus or RA (in her words). She suggested I see my reg dr immediately. So off I go. He looks at me and says well you have P, like I was a dummy. When he realized I had no clue, he then let me know my arthritis was probably PA even though my blood work showed RA markers ( I now know they are related). He referred me to a rhuematologist (sorry spelling?) who told me to continue with 800 mgs ibuprofen 3x a day and come back when it gets worse. My PA is mild as well, weather, weight and activity set it off. (weird but the new derm told me the same thing, come back when I get worse, so much for preventitive medicine). Since being told I have PA (I thought my arthritis was because of childhood surgery for dislocated hips), I have begun to read and research. I am constantly finding explanations for things being related to my P and PA that have never been told to me. I have been treated for symptoms indvidually that probably should have been looked at collectively. I just don't understand why drs just can't put two and two together. Why am I running around in circles? Thanks for letting me vent.
Mary
hi mary,
sorry i can't help much but welcome to the p famliy. you will met alot of wonderful people and find alot of great info. welcome and nice to meet you
have a good night all
richard
I am new here and have had P as long as I can remember. I come form a long line of P folks. I am lucky, I have a very mild case by what I have read here. I believe most on my family do as well. My grandma had it, my mom, my aunt, my sister, my daughter, we all have it. We mostly have the itchy scalp, patchy elbows and knees and occassional really good flare ups. I have been diagnosed with guttate p and have had good flare ups after a few runs of strep. One time on the day I went for a company physical for a new job. Got worse cause I stressed over what would happen with the adorable red bumpy rash all over my body and me going to work with preschoolers. I should not have stressed, in the typical company physical the dr didn't notice the rash until he read it on my info sheet and never looked at it. He asked and when I said it was p he said ok and stamped me well. Lol. I am now 44 yrs old and over the yrs no one has ever sat me down and told me anything about P. I always thought it was just a weird skin ailment. It has not given me much problem. About 5 yrs ago my gyn was looking at recent blood work and said my ANA count was up. Why was that she asked. I told her I did not know what she was talking about. For any who don't know ANA counts represent auto immmunity in the body. A raised count means you have an autoimmune disease like lupus or RA (in her words). She suggested I see my reg dr immediately. So off I go. He looks at me and says well you have P, like I was a dummy. When he realized I had no clue, he then let me know my arthritis was probably PA even though my blood work showed RA markers ( I now know they are related). He referred me to a rhuematologist (sorry spelling?) who told me to continue with 800 mgs ibuprofen 3x a day and come back when it gets worse. My PA is mild as well, weather, weight and activity set it off. (weird but the new derm told me the same thing, come back when I get worse, so much for preventitive medicine). Since being told I have PA (I thought my arthritis was because of childhood surgery for dislocated hips), I have begun to read and research. I am constantly finding explanations for things being related to my P and PA that have never been told to me. I have been treated for symptoms indvidually that probably should have been looked at collectively. I just don't understand why drs just can't put two and two together. Why am I running around in circles? Thanks for letting me vent.
Mary
Answers:
hi mary,
sorry i can't help much but welcome to the p famliy. you will met alot of wonderful people and find alot of great info. welcome and nice to meet you
have a good night all
richard
1 2